The Journal of Pediatrics2026年5月28日

談論未來的失能:新生兒及兒童加護病房家庭會議之質性分析

// Talking about Future Disability: Qualitative Analysis of Family Meetings in Neonatal and Pediatric Intensive Care Units

本研究分析了兒童及新生兒加護病房中家庭會議對嬰兒殘疾的用語|質性分析45場會議,識別出包括委婉語與生活品質考量在內的五大討論主題|結果凸顯殘疾語言的複雜性,強調改進醫療教育以協助臨床醫師更清楚且敏感地溝通殘疾議題的重要性。

// This study analyzed language used in family meetings about infants' disabilities in pediatric and neonatal intensive care units. Through qualitative analysis of 45 meetings, researchers identified five themes in how disability was discussed, including euphemisms and quality of life considerations. The findings highlight the complexity and nuances in disability language, showing its significant impact on communication. The study underscores the need for improved medical education to support clinicians in discussing disability clearly and sensitively.

#Intensive Care Units, Neonatal#Intensive Care Units, Pediatric#Children with Disabilities#Professional-Family Relations#Communication

Published 2026年5月26日

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